"This book was created for families with a child diagnosed with Koolen-de Vries Syndrome (KdVS), with a special focus on the siblings of diagnosed kids. This story follows two siblings, McKenna and Dallen, who like to play together and have sibling adventures! This sibling pair is unique because Dallen has Koolen-de-Vries Syndrome, which gives McKenna some extra challenges and fun! McKenna explains how she tells her friends about what having a genetic condition means, the common features found in an individual with KdVS, and how she sometimes has big emotions when Dallen has extra doctor's appointments that come with having KdVS. The story goes through coping skills McKenna can use while her parents are away with Dallen. There is also a list of frequently asked questions/answers that siblings of someone with a genetic condition may have. Join McKenna and Dallen as they embark on this adventure together!" - McKenzie Bell

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Published Children's Book (2024)